Here is our story….
Psalms 9:12 For he who avenges murder cares for the helpless. He does not ignore the cries of those who suffer
My mother was admitted into the hospital on the evening of September 5th at 9pm. My mother was able to walk, talk, eat, etc. By mid-Monday, she was unable to do any of those things, she was confined to a bed and diagnosed with the big “C” and pneumonia. Immediate fear, panic and a flood of emotions takes over me.
Like any “real or good” conspiracy theorist (insert eye roll) I had heard the stories about people going into hospitals for medical help and not leaving the way they envisioned. Alive. I never paid too much attention to this honestly, I thought it was awful, I hoped it wasn’t true and I moved on. Like many things in life, if it doesn’t pertain to us directly, we skim over it. No harm, no foul, until it happens to you or your loved one.
During the first two days of my mother being admitted, we witnessed an increasing decline in health. Monday afternoon my mother couldn’t even hold her phone, much less answer or respond to a text message. The fear was increasing, not being able to talk to my mom, not knowing from her if she was okay, was unimaginable, and things were getting worse. The oxygen requirements were going up, 10 liters, 15 liters, 40 liters, 60 liters. Then the nurses keep talking about the next step is go on CPAP. My heart sank. I started asking questions, what happens after that? Intubation. Intubation happens after that. Intubation is the prelude of Ventilation.
I immediately call my sister and say this is not happening! We have to do something, the week before, this hospital had 10 patients die! I’ve heard these stories and I know what happens once people are put on a ventilator! We both agreed, we cannot let that happen. During Randall’s visitation with my mom, I called him on facetime, I needed to see my mom. She had not responded to one message or answered my phone calls in days. He answered, showed my mom. She couldn’t lift her head off the bed. The only words she could say were “Get me Dr. Bartlett.” “See if he will take me.” My mom was scared, alone and she was dying.
I spent every minute I had from that moment on trying to save my mother’s life. I did reach out to Dr. Bartlett, with the help of him, his sisters and an army of other people I began to understand what we were facing. I learned everything I could about my mother’s care. I called and got a list of all of her medications, what they are used for, how much she was getting and how often. I researched, I read studies, I watched videos about these medications. None of the medications my mother was on were actually treating the virus. NONE. That statement comes with facts, as in clinical studies, FACTS. The Facts are that majority of these people being treated in the hospitals are not dying of the big “C.” They are dying of organ failure amongst other things. How do you explain seemingly healthy people going to the hospital with the big “C”, needing help breathing and all the sudden, in a matter of days, in 5-9 days they have kidney failure, multiple organ failure, fluid in their lungs? It is the medication they are being treating with. I reached out to every medical person I could think of, I needed help to save my momma.
Most of us are familiar with or have heard of Dr. Bartlett’s “Silver Bullet” for the big “C.” I had heard of it but didn’t know what that actually entailed. I spent time researching the medications, the protocol and together my family and I decided that this is what my mother needed to save her life.
The fight to save my mother’s life was just beginning…
I called the hospital, repeatedly. Asking for the doctor to call me, morning, noon and night I called. I requested for the doctor to call me, he never called. I requested to speak with the doctor on call, she refused my calls every time. When I was calling, I was requesting that they do not give my mother a certain medication (you know the one that causes multiple organ failure in 5 days or so). (Oh, did I mention my mother already had kidney problems and this medication was still used.) I requested for the Doctor to call me before another dose was administered, I called and requested for 3 days and each of these days my mother was given this medication. I also requested that I wanted my mother treated with Budesonide, I wanted nebulize treatments with Budesonide every two hours. This request was also ignored, repeatedly. Not only was this request ignored but I was told by a charge nurse, that the hospital probably didn’t even carry that medication, that it most likely wasn’t even in their pharmacy. IF the doctor agreed to use it, they would probably have to order it and it is mostly likely out of stock. Budesonide is common asthma medication; it is in fact in every hospital pharmacy. Fun Fact, if you went into the hospital while having an asthma attack, you would probably be treated with this medication. Interesting, to think that if you go in for asthma, you can’t breathe you get treated with Budesonide. You go in for the big “C”, you can’t breathe, you get treated with remdisivir, Albuterol and eventually a ventilator. Albuterol, also an asthma medication does not do what Budesonide does these are two completely different medications. Albuterol opens the airways to your lungs. Budesonide treats inflammation in the lungs. (What is the big “C” again? Inflammation of the lungs) It also treats swelling in the lung tissue, reduces scaring and it shuts off the poisoning of the virus.
Now, why would a hospital employee lie about having this medication? You can’t logically say they didn’t know they had it on it on hand…they have it and they are choosing not to use it.
After calling and calling and no return phone calls. Friday morning, I finally did receive a call from my mothers’ doctor. I explained to him first, I need the people killing, organ failure medication to stop immediately. Obviously, not in those words, I did not ask, “I told him, do not administer another dose of that medication to my mother.” He told me “It’s okay, they were just going to give her one more dose, this morning.” I said “no sir, please do not give it to her.” He insisted several more times, that they were going to give it to her, I could not believe what I was hearing, I kept telling him “No more”. Finally, he agreed, he said “she will not get any more.” Finally!
Next, I began asking for her to be treated with the Budesonide. He told me “No, that they don’t use that there to treat the big “C” and that there was no proof or studies showing that it helped treat the virus.” He told me “That no one in that hospital had ever been treated with budesonide, that had the big “C.” this was a lie, I knew it, I knew of someone that was treated with it the week before. I mentioned “that the proof was in the fact that the hospitals that were using it, it was saving lives! I stated the benefits of the treatment, I probed the question “how could it not help? As a family we wanted to try this medication on our mother. That it is our mother’s will, she wants this medication, and this is her preferred treatment plan.” The doctor stood firm, said that “he would not treat with Budesonide.” You do not understand the amount of push back and lies, I received, this conversation lasted about 45 mins of back and forth. You ever argued with a doctor, whew! I just wanted to save my mother and it seemed like he didn’t. I would not give up, I kept on until he finally agreed! This was a blessing. He also agreed to double her oral vitamin intake but refused to give them intravenously. As a matter of fact, he told me “The hospital didn’t have vitamins to give intravenously. They didn’t do those there.” Humm, how do people on a vent or in coma get vitamins? I Decided, to save that argument for another day. He agreed to the treatments and a budesonide inhaler, not to the protocol I had asked for as far as amount and frequency. But, it was a start and I was thankful. Praise the good lord, I knew this what she needed to survive.
I immediately hung up with the doctor, shared the good news with family and drove to the hospital. I wasn’t done. I knew the treatments would help my mom but at the milligram and frequency he agreed too, how long would it take for my mother to be okay? I walked into the hospital and requested to see another doctor, not my mom’s but a doctor that I heard had used the Budesonide on a patient the week before. A patient that the hospital was insisting she be put on a vent, her mother fought for her child to receive the medication and after 36 hours of treatments, her child was released from the hospital. My goal was to talk to this doctor, to hear his story of success with the treatment and just maybe he would talk to my mom’s doctor. Maybe he could purvey the importance of the dosage and frequency? Maybe he could just encourage him that he made the right decision and that he was in fact “saving my mother’s life.”
Unfortunately, this is not what happened at all. They (someone) realized who I was, that I wasn’t requesting my mom’s doctor, they called her doctor and told him I was there. My mom’s doctor called the receptionist, asked to speak to me, as I answered the phone he asked “what are you doing here? Didn’t I just speak to you?” I said “yes, I appreciated his time and his help. But I was there to see another Doctor.” He asked “why?” of course and I explained “I wanted to talk to him about a treatment option that he is familiar with.” We hung up and shortly after Reluctantly, I was asked to meet at my mother’s room. I arrived on the 7th floor at her door, I could hear her coughing, my heart was breaking! I was scared to go in, I was scared because I didn’t want the hospital to think I was taking advantage of this situation (it was not during visitation hours) and I didn’t want the hospital to refuse my mom a visitor later in the day. So, I waited, outside that door. I prayed and I prayed for the short time I was out there.
The floor coordinator nurse came and asked me to wait in the waiting area (that was closed) and the “doctors” and herself would be with me with shortly. Not knowing what to expect, I waited. I thought I was meeting with one doctor not two and a floor nurse coordinator. I brought nothing in with me really, I was there to hear a success story of a doctor that saved a young girls life using Budesonide. I had no idea what I was in for….
The doctors and floor nurse came in sat down and asked, “why was I there?” I explained I came to speak with the other doctor about his experience using Budesonide. My mother’s doctor’s eyes bulged out of his head, as in he had no idea, I guess that his collogue had used the treatment. The other doctor, to my surprise immediately denied ever using the treatment. He repeatedly told me “That he had never treated anyone with budesonide that had the big “C.” That I was wrong. Trying to maintain the patients confidentially, I reminded him of her age, race, that it was just last week September 1st. He still denied. Both doctors soon chimed in and stated that no one had ever been treated with Budesonide in that hospital. Not a big “C” patient anyway. I knew that was not the truth and they continued to lie. I asked if I had the wrong doctor, was there another doctor with the same last name, same speilling? The answer was NO, I had the right doctor, he was just lying. I asked, “if it wasn’t used here to treat “c” patients then why did my mom’s doctor agree to start the medication this morning?” Her doctor then retracted on giving my mother the treatment! He said that “when we hung up, the respiratory leader/nurse and another nurse said that “he couldn’t use that treatment.” He states he will give her a budesonide inhaler 3x a day, that is it. How is an inhaler going to save my mom’s life? Of course, I am furious, this is unacceptable!
The conversation continues, I am now stating facts, studies and statistics about their treatment options. I am stating my rights, my mother’s rights and the Hippocratic Oath that doctors take to “Do no harm.” Are they honoring the oath by denying basic treatments & right to patients and family? Or are they betting on the fact that you don’t know your rights as a patient or the family of a patient? Lastly, and the most saddening, are they so blinded by the financial benefit/gain of using the NIH protocol, that are willing to let people die? Has the hospital staked their financial prosperity in the mortality of its patients? Is it true, money for mortality?
The doctors and floor nurse continue to lie, to make up every excuse to why they cannot provide a proper, lifesaving treatment to my mother, which is with in her rights of requesting. Let me restate this, “It is your right to choose the treatment option you believe that is best for yourself or for your loved one.” YOUR RIGHT
The doctors and nurse explained to me that I didn’t understand the process of providing my mother with these treatments. That by doing these treatments, my mother would be spreading the virus into the air because the treatments require you to breath in the medication and exhale the virus. Is that not what is happening already? Is she not breathing in and out? Not to mention, I knew that the hospital had spent millions if not billions of dollars on a new ventilation system last year because of the big “C”, I knew that all the rooms were negative pressurized rooms, and the virus could not to be transmitted through the air of the ventilation system. I also knew that statically, changing someone’s tube on a ventilator actually expelled more of the virus than using a nebulizer for treatments, unlike what they had told me. The doctors and nurse informed me that by agreeing to do these treatments, that they would then have to explain to every “c” patient that this treatment was being used. You mean to tell me that you would have to go to every patient and explain to them that there is a “better actual life saving” treatment option available to them, that it has been available, that you never told them about and is now being used on another patient! My response “THEN DO IT!” It’s their right to know, it’s their right to know their options! It’s their right to know treatment options, risk and benefits. “TELL THEM NOW!”
After being gained up on 3 to 1, spoken to in a condescending tone for over an hour the meeting was almost over, I could tell. I clarified that my mother would not lose her visitation because I was there. The floor nurse stated, “that my mother’s privilege of visitation would be lost for the day.” So, my mom, who is terrified, dying in that room alone, is being punished because I met with her doctors and challenged their treatment plan. Even though I never saw my mom, I never signed in at the visitation registry, no one but them and the receptionist knew I was even there. She didn’t get a visitor and I didn’t a get a visit. This is how your loved one and yourself are treated for advocating and protecting your loved one, you’re punished.
I was getting nowhere, and no progress was being made. I asked one final question to each of them. “Knowing the vow, the oath that you took, can each of you tell me that you whole heartedly believe that you are honoring that oath? That you agree with denying my rights and my mother’s rights to this treatment is the right thing to do and in the best interest of my mother?” Each one of them agreed individually. And, just like that, they each exited that waiting room. I sat stunned. People had warned me to be ready for a fight and this meeting empowered me, I was coming back and this time I would be ready.
Meeting Round #2
I spent the rest of my morning calling every person I could think of at that hospital. The risk management team, the patient coordinator, everyone in management had a message from me on their voicemail. By 2pm, I was back up there, my sister (has just flown in) & I went straight to my mom’s floor and demanded to speak with the doctors again. We were asked to go to that dreaded waiting room again, so we waited. This time the ACNO, the floor nurse coordinator and the patient coordinator all showed up and stood in the doorway of the waiting room, never taking a seat. The conversation became intense as we rehashed everything that had happened earlier as well as throughout my mothers’ stay. We discussed the audacity of them refusing and punishing my mother by not allowing a visitation. Is it acceptable that for the last 5 days they were not providing my mother with her prescribed medications that she has been on for the last 20 year, that included her arthritis and pain medication for her back. We discussed her rights; our rights and how we would not tolerate this type of neglect and we would not stop to get her the treatment she needs to live.
The hospital agreed to a family meeting and confirmed, they would be in touch before the end of day.
By 4pm the ACNO called, said that the doctors agreed to meet with us on Monday, the 13th. My sister & I snapped back and said “that was completely unacceptable, my mother was not going to go all weekend without treatment, my sister flew in today and needs to get back home. It’s four o’clock you either meet with us today after 5 or first thing tomorrow. If you don’t arrange this, I will sue every single one of you including this hospital for neglect for not providing her prescriptions, discrimination for providing Budesonide to other patients and lying about using it, withholding medication that could potentially save my mothers life and for violating our patients/family rights and anything else I could come up with. What you all are doing is illegal and we will not stand for it.”
An hour and half later, five thirty pm, the ACNO called back and said that the doctors agreed to do the Budesonide treatments. But they would only agree to .5 mg three times per day. I said I would never agree to that, I want 1 mg, every two hours. After, a few minutes the ACNO is back on the line and says the doctors agree to 1 mg three times a day. I said “NO” I want 1 mg, every two hours. After a brief pause, they agreed to 1 mg, every 4 hours! We did it! We saved our mommas life, y’all! We agreed to the meeting on Monday at 10 to go over her vitamin intake and some other things. This was no longer just about my mom, it was about other families too. I vowed to save my mom’s life, then save others too.
Reinforcements
Monday meeting, we entered into a board room, my sister, myself, the CNO, ACNO, the patient coordinator, the nurse floor coordinator, the respiratory leader, my mothers doctor and the doctor that I requested initially for his experience using the Budesonide treatment. That is a lot of people, eight to be exact eight people with a lot of different letters behind their names, representing all their medical accomplishments. Just to meet with my sister and I. We discussed the intravenous vitamins, once again it was denied that they were not able to do that. That it was an impossible option because the vitamin bags were not even in the hospital. Side Note that people that are unconscious were receiving their vitamins somehow, did they care to explain that? Obviously, this was just another lie, they did have them and were not willing to give them to my mother. We discussed why they were so adamite about not giving my mother this medication. And, they stated that they follow the NIH Protocol and budesonide is a home treatment with no studies. Let me mention that I read parts of the NIH Protocol (it’s 356 pages by the way) and they were not following the NIH Protocol as strictly as they would have you believe. I think they were a bit shocked about my knowledge of the NIH Protocol, and even tried to tell me that my information was old, from the year before and it was proven to not be conducive in treating the big “C.” I had printed copies of portions of the protocol, I read them to the room, the protocol on Vitamin C, if provided intravenous and mixed with hydroxychloroquine, studies proved to reduce patients hospital stay by 79% and lastly it was updated April 23rd, 2021. We were then told, the doctors are busy and that information changes often, they don’t have time to keep up with and read all the changes. Do you understand the absurdity of this statement? You are doctors, a year and half into a pandemic, people are dying all around you and your defense is you follow NIH Protocol, but you are too busy to read if there are any updates on how to save your patients’ lives, really? Putting this into perspective, this meeting is on September 13th, the NIH Protocol updated April 23rd, that is five months without reviewing the protocol. How many months prior to the April 23rd update was it that the doctors check on any updates to the protocol? Oh and you don’t give intravenous vitamins to anyone, even if the NIH says to do so to save lives. Got it.
After the meeting, the hospital, the respiratory team, continuously missed Budesonide treatments with my mother. How can a hospital just not provide treatment to someone? Is it legal to just not give someone their medication? Is it okay to never notify the family of missed treatments or to make up for the missed treatments? Is it okay to belittle a patient’s family for questioning and following up on their loved one’s treatment? Oh, and is it legal to lie to a patients’ family about risks of doubling up on treatments that were missed? I could go on and on with these types of questions…
Here’s the deal, the hospitals, doctors, (some) nurses first, want you trust them unconditionally. Then, they’re counting on you to not know your rights. They are betting that they are smarter than you. That you will not invest the time and research to not only their treatment plan but an alternative. They hope you will not be courageous enough to stand against them, that you will be intimidated by their education and intelligence.
Lastly, their intentions are to wear you down, that you are already weak and that after a few “No’s” you will give up. That you will give up on your loved one, that you will trust their word (again) because that is the only hope they are giving you.
The Good News
Budesonide, nebulized treatments started the late evening of September 10th. By the next morning after only four (4!) treatments, my mom was texting me, sitting up in her bed, she was in good spirits, witty and funny. She even ate her first meal in the hospital, she actually like it! Haha In less than 24 hours, she was completely different person!
The next few days she felt better each day, by Tuesday, four days (4!) on the treatments they began lowering her oxygen requirements. Each day she was getting better, praise the good lord y’all! Fourteen days (14!) after starting the treatments, she was released from the hospital!
All the glory belongs to God and the Bartlett family. That family is doing God’s work and helping to save lives. My entire family are all forever grateful to them. They are now our friends, we are bonded by this travesty sweeping our nations hospitals, to save others lives right alongside of them. But the real bond is in the lives that will be saved, the families that will also become friends. The network of people coming together, to help others in this situation. Ask yourselves…Why are patients going into the hospital for a UTI, testing positive for the big “c” and dying days, weeks or months later, IN THE HOSPITAL. THINK. Why would a hospital deny the medication If it could “potentially” save a life, why are they not trying it? Why the battle, why the lies, why the deaths? Never say that this is made up story, that this isn’t happening in Austin, Plano, Stanton, Kansas, Virginia, Ft. Worth, Arkansas. I’ve spoken to these people that are heartbroken, scared of losing their beloved mom or dad, one of their children. Crying, begging for our help to save their loved one’s life.
Stop pretending this isn’t happening to others in your community, your friend’s mom, your neighbor’s son, are at MCH or another hospital right now. Being denied this treatment. This isn’t a conspiracy. This is real life and people are dying inside your community hospital.